The 2018 CDG Scientific & Family Conference was held February 23-25, 2018 in San Diego, California! Please stay tuned for updates regarding our post-conference educational program, best moments video and highlights from this year’s amazing conference!
May 16th – Congenital Disorders of Glycosylation (CDG) Awareness Day!
May 16, 2016 was the first recognized Congenital Disorders of Glycosylation (CDG) Awareness Day throughout the United States! Global efforts to raise CDG Awareness were made and a petition has been submitted to the World Health Organization to request that May 16th be recognized as the annual World Congenital Disorders of Glycosylation (CDG) Awareness Day!
What are you doing on May 16th? Experiencing the success of our 3rd Annual Campaign to Support World Congenital Disorders of Glycosylation (CDG) Awareness Day! With so much awareness spread worldwide, we have received hundreds of CDGAwareness smiles to our Campaign Gallery, thousands of Likes on our CDGAwareness Day posts, hundreds of Shares, and we have raised over $70,000 through our CDG Awareness Day Fundraising Campaign! We THANK EVERYONE for their support and commitment to our 2018 World CDG Awareness Day Campaign and encourage this year’s incredible momentum to continue as we advance awareness, research, and treatments for all children and families
affected by CDG.
May 16th is World Congenital Disorders of Glycosylation (CDG) Awareness Day! This day is designed to raise awareness and increase knowledge about CDG. Check out our USA State Map to see which States officially proclaimed May 16, 2018 as CDG Awareness Day!
To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign!
The 3rd World Conference on CDG for families and professionals: United shaping the future for CDG, was held the 15th and 16th of July, 2017 in Leuven, Belgium. For additional information, please visit apcdg.com.
Video summarizing the Best Moments During the Second World Conference on CDG in Lyon, France
CDG Patient Advocacy groups and professionals are united to combat major challenges faced by CDG patients and family members. This video shows us that together we can make a positive difference in patients’ lives. This video was funded by the Crowdfunding Project “One CD=One Live CDG”, done in 2014 by families, friends and professionals.