The 2018 CDG Scientific & Family Conference was held February 23-25, 2018 in San Diego, California! Featuring 32 captivating presentations from a diverse panel of experts, 90 medical professionals and 53 families united to support and enhance CDG research, knowledge, therapeutic and alternative treatment strategies. The conference sessions were recorded and the post-conference video program can be viewed on the CDG CARE YouTube Channel.
May 16th – World Congenital Disorders of Glycosylation (CDG) Awareness Day!
May 16, 2016 was the first recognized Congenital Disorders of Glycosylation (CDG) Awareness Day throughout the United States!
What will you be doing on May 16th? Supporting global efforts to make this 4th Annual Campaign to Support World Congenital Disorders of Glycosylation (CDG) Awareness Day the biggest success to date! Join our efforts to raise $75,000 to advance CDG awareness, education, research, and resources for families that will help to improves the lives of children and young adults diagnosed with CDG!
This year’s Campaign will run February 28th through May 16th. If you are organizing or running in a 5K run/walk, asking families to donate to your favorite cause for your birthday, or doing a tribute in honor of a loved one… we have got you covered! Crowdrise is an easy use charity platform. Just visit our Donations Page, create your Fundraiser or Event, and join our efforts to raise CDG Awareness in your Community and Nationwide! We are again offering CDG Awareness Day wristbands and magnets while supplies last! These items are perfect to give to friends, share with schools, distribute amongst your community and show your support for CDG Awareness Day!
We are also actively looking for volunteers! If you are interested in volunteering to serve as a CDG CARE State Advocate Representative, please send us an email at firstname.lastname@example.org. We are in need of one Volunteer from each of the 50 States, so help us Paint the US GREEN and email us TODAY!
To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign!
The 3rd World Conference on CDG for families and professionals: United shaping the future for CDG, was held the 15th and 16th of July, 2017 in Leuven, Belgium. For additional information, please visit apcdg.com.
Video summarizing the Best Moments During the Second World Conference on CDG in Lyon, France
CDG Patient Advocacy groups and professionals are united to combat major challenges faced by CDG patients and family members. This video shows us that together we can make a positive difference in patients’ lives. This video was funded by the Crowdfunding Project “One CD=One Live CDG”, done in 2014 by families, friends and professionals.