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Where CARE Grows
Research and Resources
New CDG CARE Grant Program Now Available! To learn more and download the grant application, click HERE.
Rare Commons has launched an English Community of CDG! With this new stage of the biomedical research project, we can reach more families to participate in this comprehensive and collaborative patient registry promoting CDG education and supporting basic research projects that involve the recruitment of patients for clinical trials. Learn more and enroll today!
News Highlights and Events
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May 16th – Congenital Disorders of Glycosylation (CDG) Awareness Day!
What were YOU doing on May 16th? Experiencing the success of our 2nd Campaign to Support World Congenital Disorders of Glycosylation (CDG) Awareness Day! With so much awareness spread worldwide, we received 340 CDGAwareness smiles to our Campaign Gallery, 2,426 Likes on our CDGAwareness Day posts, 537 Shares, 70 Comments, and we reached 69,178 people worldwide! We painted the World GREEN, spread CDGAwareness, held 30 Events, and THANK EVERYONE for their support and commitment to our 2017 World CDG Awareness Day Campaign!
May 16th is World Congenital Disorders of Glycosylation (CDG) Awareness Day! This day is designed to raise awareness and increase knowledge about CDG. Check out our USA State Map to see which States officially proclaimed May 16, 2017 as CDG Awareness Day!
If you are interested in planning an awareness event on or around May 16, 2018, please send an email with your event information to worldcdgawareness@gmail.com. To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign!
2018 CDG Scientific & Family Conference
The 2018 CDG Scientific & Family Conference will be held February 23rd thru 25th 2018 in San Diego, California. Registration is now OPEN! For additional information, to view the preliminary agenda and to Register NOW, please click HERE.
