CDG Care

CARE Grows as global collaboration and partnerships raise awareness and strengthens the future for our Community.

CARE Grows with every medical and therapeutic advancement that leads to improved care.

CARE Grows as donor commitment broadens to support new educational and research opportunities.

CARE Grows with every new patient who is properly diagnosed.

CDG Connect Patient Insights Network (PIN)

CDG CARE is proud to partner with the Invitae Patient Insights Network (PIN) and Cerecor to offer the first international CDG Patient Registry – CDG Connect!

CDG Connect will serve as the centralized global network for CDG patients, researchers and drug developers to amplify the voice of CDG patients and optimize the search for better treatments.

CLICK HERE to enroll in CDG Connect TODAY! Share your experiences, access data and insights and advance research for CDG. Your participation may help us discover findings to improve patient lives. Together, we can build the CDG Connect Community!

CDG CARE Grant Opportunities!

We are excited to announce that through continued funding and donor support, we are launching a new 2019 Family Education and Medical Travel Grant Program! To learn more about the financial support that will soon be available to CDG families, CLICK HERE to visit our Resources Page!

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May 16th – World Congenital Disorders of Glycosylation (CDG) Awareness Day!

May 16, 2016 was the first recognized Congenital Disorders of Glycosylation (CDG) Awareness Day throughout the United States!

What will you be doing on May 16^th? Supporting global efforts to make this 4th Annual Campaign to Support World Congenital Disorders of Glycosylation (CDG) Awareness Day the biggest success to date! Join our efforts to raise $75,000 to advance CDG awareness, education, research, and resources for families that will help to improves the lives of children and young adults diagnosed with CDG!

This year's Campaign will run February 28th through May 16th. If you are organizing or running in a 5K run/walk, asking families to donate to your favorite cause for your birthday, or doing a tribute in honor of a loved one... we have got you covered! Crowdrise is an easy use charity platform. Just visit our Donations Page, create your Fundraiser or Event, and join our efforts to raise CDG Awareness in your Community and Nationwide! We are again offering CDG Awareness Day wristbands and magnets while supplies last! These items are perfect to give to friends, share with schools, distribute amongst your community and show your support for CDG Awareness Day!

We are also actively looking for volunteers! If you are interested in volunteering to serve as a CDG CARE State Advocate Representative, please send us an email at proclamation@cdgcare.com. We are in need of one Volunteer from each of the 50 States, so help us Paint the US GREEN and email us TODAY!

To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign!

SAVE THE DATE... July 26-28, 2019 for the upcoming 4th World Conference on CDG to be held in Lisbon, Portugal! For a copy of the Program Agenda, Registration and Volunteer opportunities, please CLICK HERE!

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CDG Care

Congenital Disorders of Glycosylation: a rare inherited metabolic disorder affecting a complex enzymatic process.

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