Join our private Facebook Group for family members and CDG professionals…CDG Global Alliance.
Where CARE Grows
Research and Resources
2016 CDG Family Post-Conference Educational Video Series
Rare Commons has launched an English Community of CDG! With this new stage of the biomedical research project, we can reach more families to participate in this comprehensive and collaborative patient registry promoting CDG education and supporting basic research projects that involve the recruitment of patients for clinical trials. Learn more and enroll today!
In full collaboration with CDG families and professionals around the world, the Portuguese Association for CDG has many resources in different languages now available! We sincerely thank and acknowledge all of the volunteers who helped create these materials and are grateful to offer them as important resources to our global CDG Community.
News Highlights and Events
Welcome to our first CDG CARE Newsletter!
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May 16th – Congenital Disorders of Glycosylation (CDG) Awareness Day!
May 16, 2016 was the first recognized Congenital Disorders of Glycosylation (CDG) Awareness Day throughout the United States! Global efforts to raise CDG Awareness were made and a petition has been submitted to the World Health Organization to request that May 16th be recognized as the annual World Congenital Disorders of Glycosylation (CDG) Awareness Day!
If you are interested in planning an awareness event on or around May 16, 2017, please send an email with your event information to worldcdgawareness@gmail.com. To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign - CARE CANNOT BE RARE!
3rd World Conference
The 3rd World Conference on CDG for families and professionals: United shaping the future for CDG, will be held the 15th and 16th of July, 2017 in Leuven, Belgium. For additional information, please visit apcdg.com.
