CDG Care

CARE Grows as global collaboration and partnerships raise awareness and strengthens the future for our Community.

CARE Grows with every medical and therapeutic advancement that leads to improved care.

CARE Grows as donor commitment broadens to support new educational and research opportunities.

CARE Grows with every new patient who is properly diagnosed.

CDG Connect Patient Insights Network (PIN)

CDG CARE is proud to partner with the Invitae Patient Insights Network (PIN) and Ichorion Therapeutics to offer the first international CDG Patient Registry – CDG Connect!

CDG Connect will serve as the centralized global network for CDG patients, researchers and drug developers to amplify the voice of CDG patients and optimize the search for better treatments. CLICK HERE to access the printable CDG Connect flyer.

CLICK HERE to enroll in CDG Connect TODAY! Share your experiences, access data and insights and advance research for CDG. Your participation may help us discover findings to improve patient lives. Together, we can build the CDG Connect Community!

CDG CARE Research Grant Opportunities!

With continued funding and donor support, we are expanding our CDG CARE Grant opportunities to collaborate and support groundbreaking CDG research efforts. Stay tuned for future announcements regarding the launch of our upcoming Call for Research Proposals and check out our Research Page to learn more about the latest grants funded, current research highlights and key publications related to CDG!

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May 16th – Congenital Disorders of Glycosylation (CDG) Awareness Day!

May 16, 2016 was the first recognized Congenital Disorders of Glycosylation (CDG) Awareness Day throughout the United States! Global efforts to raise CDG Awareness were made and a petition has been submitted to the World Health Organization to request that May 16th be recognized as the annual World Congenital Disorders of Glycosylation (CDG) Awareness Day!

What are you doing on May 16^th? Experiencing the success of our 3rd Annual Campaign to Support World Congenital Disorders of Glycosylation (CDG) Awareness Day! With so much awareness spread worldwide, we have received hundreds of CDGAwareness smiles to our Campaign Gallery, thousands of Likes on our CDGAwareness Day posts, hundreds of Shares, and we have raised over $70,000 through our CDG Awareness Day Fundraising Campaign! We THANK EVERYONE for their support and commitment to our 2018 World CDG Awareness Day Campaign and encourage this year's incredible momentum to continue as we advance awareness, research, and treatments for all children and families
affected by CDG.

May 16^th is World Congenital Disorders of Glycosylation (CDG) Awareness Day! This day is designed to raise awareness and increase knowledge about CDG. Check out our USA State Map to see which States officially proclaimed May 16, 2018 as CDG Awareness Day!

To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign!

2018 CDG Scientific & Family Conference

The 2018 CDG Scientific & Family Conference was held February 23-25, 2018 in San Diego, California. Stay tuned for important post-conference educational program information, along with our soon to be released best moments video and Conference highlights from our most recent CDG/NGLY1 event!

SAVE THE DATE... July 26-28, 2019 for the upcoming World CDG Conference to be held in Lisbon, Portugal! More details coming soon!

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CDG Care

Congenital Disorders of Glycosylation: a rare inherited metabolic disorder affecting a complex enzymatic process.

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