Congenital Disorders of Glycosylation: a rare inherited metabolic disorder affecting a complex enzymatic process.
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May 16th – World Congenital Disorders of Glycosylation (CDG) Awareness Day!
May 16, 2016 was the first recognized World Congenital Disorders of Glycosylation (CDG) Awareness Day! And in an effort to continue to raise CDG Awareness around the globe; each year CDG CARE launches a 2-month campaign leading up to May 16th to promote resources, support events, advance research and raise funds to support families that will help to improve the lives of children and adults diagnosed with CDG.
On May 16, 2019 the CDG Community came together and officially held the biggest and best global CDG Awareness Campaign effort to date! With an intense and effective social media and email dissemination program, we promoted a new CDG "Just the Facts" Series, a CDG Heroes Spotlight, and targeted Campaign and GoGreen! images which were viewed over 57,000 times! The CDG Community came together and shared social media posts 713 times, resulting in an overall impact of 8,753 positive reactions and comments over the course of just 6 weeks!
Through this year's CDG Awareness Day annual fundraising campaign, CDG CARE supporters raised over $26,000 to advance our mission! CDG CARE also recruited volunteers throughout the United States to serve as State Advocate Representatives and request from their respective State Governors that May 16, 2019 officially be Proclaimed as CDG Awareness Day throughout their State! We can stand proud this year knowing that 16 States across the country supported our efforts and the USA was Painted GREEN in support of CDG Awareness Day as represented below! If you are interested in volunteering in future years to help support efforts in your State, please send us an email at proclamation@cdgcare.com TODAY!
We thank all of our CDG families, friends, medical professionals and community supporters for helping us to make May 16, 2019 World CDG Awareness Day our most impactful CDG Awareness Campaign to date! Together we are strong and we will continue to stand united in our cause to bring HOPE to all those affected by CDG!
REGISTRATION IS NOW OPEN! Join us, February 28-March 1, 2020 for the upcoming CDG Scientific and Family Conference to be held in San Diego, CA! This 3-day event will host educational sessions focusing on the science behind CDG, provide valuable resources for families and patients, and present interventional and therapeutic approaches for the management of CDG. To view the preliminary agenda, venue details and to Register NOW, CLICK HERE! 
We are also continually seeking support from our engaged Community partners to serve as Conference Sponsors! Please CLICK HERE to learn more about our 2020 Conference Sponsorship Opportunities a help promote the exchange of education, resources and therapeutic approaches for children and adults affected by CDG.
